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Trientine and Wilson's DiseaseNewsUnivar Supports Wilson's Disease awareness campaignUnivar is committed to educating and increasing the awareness of Wilson's Disease, a very treatable and manageable disease, within the medical community. As such Univar would actively support any conference, workshop or seminar which aims to educate clinicians and patients about the condition. Contact Univar to find out how your event can be supported. Storage conditions of Trientine capsules Patients are required to store Trientine capsules in the fridge. Many patients, patients groups and doctors alike have expressed their frustration and lack of flexibility in the storage condition for Trientine. Univar have listened to patients concerns and is therefore pleased to announce that a study program to investigate the potential of storing Trientine capsules at normal room temperature have stated. Univar’s is dedicated to improving patient care and believes that patients’ compliance to treatment therapy is the key Please check our website regularly for update on this program. Up coming meeting November 2007: 4th European Conference on Rare Diseases (ECRD 2007) 27-28 November 2007 Lisbon, Portugal For more information: www.rare-diseases.eu April 2008 25th Anniversary of Wilson disease Association 25-27 April 2008 For more information: www.wilsonsdisease.org Trientine and Wilson's Disease News (back to top) |